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Aug 29, 2019Gramtastic rated this title 4 out of 5 stars
Having lost a son 12 years ago to Cystic Fibrosis, at the age of 24, I read the book to see how accurate it is. I'm impressed that they did their research, however, I would have included that this is a genetic disease and a mention about how someone is born with Cystic Fibrosis. I gave the book four stars for how accurately it portrays the struggles those with CF face every day. My son did undergo a double lung transplant in 2005, but due to problems with organ rejection and recurring infections, he passed away 22 months after. The transplant did give him at least six really good months where he felt like a whole new person, being able to breathe without struggling for the first time in his life. I hope that someday soon there is a cure for this horrible disease. Thank you to all of you who read the book, and share with others what you have learned. It's through this sort of "promotion" that this world will realize how often we take the simple task of breathing for granted. On a side note, listen to the song "I lived" by OneRepublic, as it is about a teenager living with Cystic Fibrosis